Featured Video: Kasey's Music Class
Kasey is a 13-year-old diagnosed with Angelman syndrome. This short documentary shows her attending a music class at her school. The music therapy teacher, Rachel Beiros, provides commentary.
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This is related documentary clip, Kasey's mom talks about signing Kasey up for the music therapy, observing the class, and how inclusive the music therapy class is. She explains how valuable the class has been for Kasey, teaching her important skills like waiting her turn and sharing.
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Featured Video: Kasey's Music Class
Kasey, a child with Angelman syndrome, goes to a music class. Her mom talks about the class and its value to Kasey.
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Invitation to Families of Individuals Diagnosed with SCN2A-Related Disorders
GeneticaLens is inviting families of individuals with SCN2A-related disorders to participate in the Clinical Picture Maker Project. Participating individuals will pilot the prototype of the DAYTool, an online application that guides families on how to record and upload videos documenting their rare disorder. These videos will be added to a database of videos on SCN2A-related disorders to educate clinicians, medical students, and caregivers on the symptoms and challenges associated with SCN2A-related disorders.
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