Clinical Picture Maker News Archive

Leah Schust Myers talks about how her son Ben is doing, interacting with clinicians, and being the quarterback for his healthcare management.

Filmed as part of Well Child Lens, a video project which extensively documented autism spectrum disorder in young children, “Opening His Eyes to the World: A Story of a Boy and Autism” follows a young child, Wells, as he is diagnosed with autism spectrum disorder and receives therapy.

In this touching clip from the Angelman Project,15-year-old Ben's parents, Pam and Malcolm, talk about the importance of Ben's photo books: they help Ben remember and communicate with other people about certain events in his life.

Some subtle social and behavioral characteristics of autism spectrum disorder can be difficult to understand without seeing. This illustrative video of twins Nathan, who is on the autism spectrum, and Ben who is typically developing, shows how video can be a great tool for demonstrating the lack of social behaviors like joint attention in many children on the autism spectrum.

Carla Forbes, mother of 13 year old Colin, who was diagnosed with SCN2A-related disorder, how she copes with anxiety and uncertainty about the future, and the important role community plays in coping with those feelings.

Henry is a child with SCN2A-related disorder. In this interview we hear from his mom, Amanda, about Henry's developing communication skills and potential absence seizures, and how she tracks his changes over time and deals with uncertainty about the future.

Expert review and validation is a critical part of our process. In order for the videos in the CPM's Video Database to be useful, we need to ensure that the titles, descriptions, labels, and other metadata attached to videos is accurate and valid. Keith Coffman, a neurologist at Mayo Clinic, is one of the experts who reviews videos for the CPM. 

In this video, Robert, an individual with Angelman syndrome, is brought in by his parents to see Dr. Hutchison, a pediatric neurologist with experience treating patients with Angelman syndrome. According to Robert's parents, he has been experiencing near constant seizures for the past several months.

This observational documentary provides a window into the lives of Kasey, a 14-year-old living with Angelman syndrome, and her mom, Dolores.