Yes! Home videos you’ve previously recorded are great, and can help create a timeline of your child’s development. You can upload them to any of the prompts, just make sure to provide an estimate of the date the video was recorded.

Your videos can be any length, but typically they should be between 1 and 10 minutes long. Please note that longer videos will take longer to upload.

You can upload videos of any resolution, but 1920 x 1080 pixels is the recommended quality setting. Higher resolution (such as 4K video) can be uploaded, but will take much longer to upload.

No, though we do encourage you to respond to as many of the prompts as you feel are relevant to you. The more videos we receive, the better picture we get of what your child’s life looks like, and how their rare disease symptoms affect their daily life.

Yes! If you have a video that isn’t directly related to a prompt, but that you feel may be relevant to understanding your child’s rare disease, you can upload it to the last prompt in the “Observation Prompts” section: “MISC: Add any other relevant videos.”

Your video is still processing. Try refreshing the page in a few minutes. Longer videos will take a longer time to process. If over an hour passes and you still see this message, try uploading the video again.

Most likely your video upload was interrupted. Try uploading the video again, and make sure not to close the window until the upload is complete.

Once you upload a video to the DAYTool, it will be reviewed by our staff and research team. We will check for and remove any references to last names, phone numbers, addresses, or other potentially identifying information. Once it’s approved, your video will be added to the See System Rare Disorder Video Database. Your video may also be used in educational documentaries. The videos in the database will be viewed by clinicians, researchers, medical students, and other individuals with rare disorders around the world.

Yes, even before your videos are published on the See System Rare Disorder Video Database, you can share your videos directly with your doctor or anyone else you’d like to show them too by going to your Share page.

While we certainly accept vertical video in the database, we generally recommend shooting video horizontally, as this remains the standard aspect ratio for screening video on computers. Horizontal video often also allows for greater context, capturing not only the subject but what's going on around the subject and how they're interacting with their environment and other people.

To search the video database, you must be signed into a Clinical Picture Maker account. If you don’t have an account but would like to gain access to CPM videos, contact us using the form on this page. If you have an account, login and click on the “Search” button at the navigation menu at the top of the website, or the “Search the Database” button from your dashboard.

Right now, the Clinical Picture Maker only has videos documenting a limited number of disorders, with a focus on SCN2A-related disorders. If you’re logged in, you can view the Disorders page to browse the diagnoses that have videos in the database.

Yes, you can create “Collections,” which are groups of videos you can organize and revisit later. To add a video to a collection, either click on the “+” button on the top right corner of a search result, or at the bottom of the video page.

Yes, please reach out to use using the form on this page.