Featured Video: "Grandpa Died, Didn't He" - Teaching Ben About Death
Ben is a 15-year-old with Angelman syndrome, a rare neurodevelopmental disorder. In addition to challenges like seizures and mobility problems, most individuals with Angelman syndrome also have a severe intellectual disability, communication delay, and are often non-verbal.
In this touching clip from the Angelman Project, Ben's parents, Pam and Malcolm, show Ben’s photo books and talk about their importance: they help Ben remember and communicate with other people about certain events in his life.
Ben's parents were very worried when Ben's grandfather became sick, because they didn't know how to teach Ben the concept of death. So they made him an integral part of his grandfather's illness, his death and his funeral, and they made a photo book for Ben which shows all the fun things Ben did with his grandfather, but also the sad parts when he got ill and eventually passed away. This book was very important for Ben, because it helped him understand what was going on and deal with his grief. He carried it around with him for months. Ben's parents feel that it's important to teach Ben about the sad parts of life as well as the happy parts, and they also want him to understand that they too will die someday.
Loading...
Related Articles
No related articles.
Latest News
-
Featured Video: "Grandpa Died, Didn't He" - Teaching Ben About Death
In this touching clip from the Angelman Project,15-year-old Ben's parents, Pam and Malcolm, talk about the importance of Ben's photo books: they help Ben remember and communicate with other people about certain events in his life.
-
Featured Video: Comparing Joint Attention In Twins Nathan & Ben
Some subtle social and behavioral characteristics of autism spectrum disorder can be difficult to understand without seeing. This illustrative video of twins Nathan, who is on the autism spectrum, and Ben who is typically developing, shows how video can be a great tool for demonstrating the lack of social behaviors like joint attention in many children on the autism spectrum.
-
Featured Interview: Carla Forbes - "A Painful Transition"
Carla Forbes, mother of 13 year old Colin, who was diagnosed with SCN2A-related disorder, how she copes with anxiety and uncertainty about the future, and the important role community plays in coping with those feelings.
Subscribe to the Newsletter
Subscribe to our mailing list to get the latest updates about the Clinical Picture Maker, including news on features, case studies, study participation, and more.